I had my followup with my new doctor today. Not much to really say about it.
My blood pressure was 156/92 while I was there. I haven’t been keeping track of it at home because I’m not sure my cuff is working right, but the few times I’ve checked it’s been between 125-140 over 80-90. She wanted it under 130/90, I think. Of course, the stress of going to the doctor usually raises blood pressure, but she still found it concerning so now my blood pressure meds are doubled.
I was also having a lot of trouble breathing, and it had nothing to do with wearing two masks (mine and the one they gave me). I’ve had the issue off and on since the week before my initial visit to the ER in April, but the last week it’s gotten really bad. Yesterday was probably the worst it’s been.
I admitted that a lot of it could be anxiety making all of my symptoms worse, but she agreed that the tightness in my chest/difficulty breathing wasn’t good. My lungs, though, sounded clear, and I can take deep breaths fine. My O2 was also 98% so I’m getting oxygen.
Anyway, she prescribed me an albuterol inhaler to help with the breathing. My son has asthma so I have experience with these, although I’ve never used one myself. Hopefully, it helps because it was really hard to sleep last night with it feeling like my trachea was coated in wool or something.
That was all we discussed. I didn’t get to bring up the anemia and the after-visit report she sent said I was up-to-date on my labs which look fine (because I had bloodwork done at the hospital). Apparently, my iron deficiency has gone away? But they also haven’t gotten my records from the other office yet to see what my levels were last year when I had special tests done (I’ve never seen them either because we lost our insurance and couldn’t go back at the time).
She also made me feel like she was implying all of my symptoms are psychosomatic and just kept bringing up making an appointment with behavioral health. Yes, obviously, I need to get back on my bipolar and anxiety meds, but my chronic fatigue isn’t being caused by (just) my depression. In fact, my depression is being made worse by the constant fatigue.
My old doctor thought the fatigue was from the anemia, but I guess I now have to hope it’s a symptom/side effect of the hypertension because if bringing my blood pressure down doesn’t solve the fatigue and anemia isn’t an issue anymore, I don’t know what I’ll do. There isn’t really a treatment for chronic fatigue that isn’t being caused by some other underlying condition. You just have to live with it, and I can’t keep living like this. It sucks.
I cried all of the way home thinking about it. All of my hopes and dreams for the future will just be gone if there’s no treatment for the fatigue. I can’t go for walks with my grandson, can’t write, can’t play board games with my son, can’t keep the house clean or do anything. I just sit here. Ugh.
My weight was also back up to 267lbs. It’s kind of impossible to lose weight when you don’t have the energy to take a shower (dear god that nearly left me in a coma earlier today) let alone exercise. The only way I’ll take in less calories than I burn is if I stop eating. I managed to lose four pounds by eating half of a small turkey sandwich with a salad for lunch for a week with a small portion of whatever I made for dinner. But we ran out of lunchmeat so I started eating leftovers for lunch which are much more fattening than the sandwich/salad combo.
The only positives I’ve seen over the last few months is that the swelling in my legs and feet have gone down. That used to happen in the summer when it would get hot but generally went away if I put my feet up and drank a lot of water. And wasn’t an issue at all in the winter. This last year, though, it was nonstop, and if I sit at my desk for more than an hour, my feet swell up so bad, I can’t bend my toes. It doesn’t go away ever and was making it hard to bend my knees (at one point, I couldn’t tuck my legs under me anymore). The swelling isn’t completely gone, but it’s so much better on the blood pressure meds. So that symptom definitely had to do with my blood pressure.
When I ran out of pills a few weeks ago, the swelling came right back and has mostly disappeared in the two weeks I’ve been on them again. So I guess that’s a win.
I have to take what I can get.